Resources for Care Partners

Please Note : Many of the national Parkinson disease organizations have specific information, online groups or provide information about local support groups for family care partners.. For example, see the discussion corner box on the home page of www.parkinson.org for an online caregiver discussion forum

Administration on Aging
National Family Caregiver Resource Room
Washington DC 20201
1-202-619-0724
http://www.aoa.gov/eldfam/For_Caregivers/For_Caregivers.aspx
Site offers fact sheets on various aspects about family caregiving as well as information about conferences. Fact sheets include topics such as communicating with health care providers, resolving family conflicts, home modifications and financial tips, among many others.

Caregiver’s Marketplace
8801 West Heather Avenue
Milwaukee, WI 53224
www.CaregiversMarketplace.com
Cash back program for anyone who gives, receives or needs care. Persons, after enrolling in the program, can receive cash back on a variety of products not usually covered by Medicare, such as Depend products for incontinence care or for mobility devices.

Caregiving.com
www.caregiving.com
This site features pages of tools and resources, including online support groups, and a kit for the new caregiver.

Caregiver survival resources
www.caregiver911.com
This web site has all types of resources and information, both general and specific. There are links to other web sites, information on books and conferences for caregivers. Site also links to Today’s Caregiver Magazine.

Family Caregiver Alliance
690 Market Street, Suite 600
San Francisco, CA. 94104
1-800- 445-8106; in California: 1-415- 434-3388
www.caregiver.org
E-mail: info@caregiver.org
The Family Caregiver Alliance is a nonprofit organization that addresses the needs of families and friends providing care at home. The organization is based in California and serves California-based family caregivers. However, its web site offers valuable information for family caregivers, regardless of their locations. Families from all around the country call the toll-free number to request advice.

The Caregiver Alliance has developed a wide array of services based on consumer needs. Its Web site offers research, publications, statistics, fact sheets, public policy news and information on a variety of long-term care concerns. It also offers an online support group in a listserv (e-mail) format. The Caregiving Info & Advice section includes a wealth of information on care strategies, stress relief, community resources, family issues and hands-on care. The Fact Sheet subsection provides a comprehensive collection of family-friendly publications filled with practical information. For more personal assistance, click on “Ask FCA”. And online Discussion Groups keep you connected, 24 hours a day, with other caregivers.

Friends and Relatives of Institutionalized Aged (FRIA)
18 John Street, Suite 905
New York, NY 10038
Helpline:1- 212-732-4455 ; Office phone: 212-732-5667
www.fria.org
Email Address: Info@fria.org
FRIA’s Mission is to assure that nursing home residents receive prompt, high quality and compassionate care. Even more broadly, they seek high quality, long-term health care for all New Yorkers in the least institutionalized setting possible, by helping relatives become effective advocates for the needs of their loved ones.

Their main tools are a telephone hotline, publications, organizing and assisting family councils within nursing homes, and training workshops for family members and professionals.

National Alliance for Caregiving
4720 Montgomery Lane, 5th floor
Bethesda, MD. 20814
1-301-718-8444
www.caregiving.org
Email: info@caregiving.org
The National Alliance for Caregiving conducts research, develops national projects, and increases public awareness of important family caregiving issues.

Among other components, the site includes the Family Care Resource Connection, which offers reviews and ratings of books, videos, websites, magazines, fact sheets and other resources addressing the range of issues and questions faced by family caregivers. The materials are submitted by non-profit organizations, caregiver advocacy groups, disease-specific groups, government agencies and for-profit companies. New resources are added regularly.

National Association of Professional Geriatric Care Managers
The Family Caregiver Program
1604 North Country Club Road
Tucson, AZ 85716-3102
1-520-881-8008
www.caremanager.org
The National Association of Professional Geriatric Care Managers is a non-profit organization of geriatric care managers. Geriatric care managers assist families and older adults in coordinating and managing long-term care plans and arrangements. They can help with long-distance caregiving, crisis intervention, counseling and support and other tasks. Many are trained in therapy or daily money management. The site offers a database of care managers available by state; find a local care manager. Site also offers ability to purchase various books on the topic of caregiving.

National Caregiving Foundation
1-800-930-1357 and 1-703- 299-9300
801 North Pitt Street, #116
Alexandria, VA 22314
www.caregivingfoundation.org
The National Caregiving Foundation focuses on the concerns, worries, and the sadness of family caregivers. The Caregiver'sSupport Kit is a product of the Alzheimer's Project of the NationalCaregiving Foundation. The Focus of the Caregiver's Support Kit is on Alzheimer's disease; however, much of the information is useful in caring for patients with other conditions requiring care and attention. The Kit is sent free to caregivers who need it. Request a Caregiver's Support Kit by calling toll free number or ordering online.

Park Slope Geriatric Day Center
Family Caregiver Project
199 14th Street
Brooklyn, New York 11215
1-718-499-7701
www.psgdc.org/guide.htm
Email: caregiver@psgdc.org
While services are based in Brooklyn this site for family caregivers provides much useful information on a variety of matters affecting families.

SAGE Caregiver Services
305 Seventh Avenue, 16th floor
New York, NY 10001
1-212-741-2247
www.sageusa.org
SAGE-Services and advocacy for aging gay, lesbian, bisexual and transgender people, offers information and a host of online groups and other resources.

The Well Spouse Foundation
63 West Main Street, Suite H
Freehold, New Jersey 07728
800-838-0879
www.wellspouse.org
This is a national self-help organization of spouses/ partners of people who are chronically ill or disabled. Its goal is to provide emotional support to well spouses via local support groups, a newsletter, conferences and other activities.